Do I have Eds and what type and mutations

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https://livewello.com/library/collagen-2720?id=5521083922120704

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I am getting genetic testing done for vEDS and I am being told that the results we get from these companies are not reliable and you cannot actually diagnose any disease process from them. I did have a hematologist tell me to bring them in that it might give them a clue as to where to look for issues.

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I checked on INVITAE website, you just need a geneticist to order the eds panels and either pay cash or wait for insurance

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So once a person gets their EDS diagnoses, then what? What help is actually available? My doctors dont know crap. They’ve told me they can’t do anything. Apparently they’ve never heard of the Cusack protocol which helped me tremendously along with a Paleo diet and certain other supplements. It’s a waste of money and time unless you need a DX to get on SSDI.