Crohn's disease and connection with rs2066847mutations

I have been suffering most of my life with extreme exhaustion (not to mention the other symptoms that have gone along with IBD). I have found that I have a list of variants associated with Crohn’s disease with one that puts me at a much higher rate (35x) higher being rs2066847. Only 1% of the population has two variants from both parents. I am getting ready to see a specialist and was wondering if anyone else on here has a story similar to mine?