Hi Jennifer, we have Ehlers Danlos in our family - yay!! However, my daughter is better at l this than I am, so I will forward this to her. I don’t think she is in this group, but maybe she will tell me to give you her email address. Can you let me know specifically what your questions are? There are so many areas to look into and learn about with this condition. It seems to have gotten worse with each generation in our family. I had some symptoms but didn’t even know about it.
BTW, my daughter’s name is Jennifer also. 
Thanks,
Chris Pezzella